2025
Bridging the Gap: A Qualitative Study Exploring the Impact of the Involvement of Researchers With Lived Experience on a Multisite Randomised Control Trial in the National Probation Service in England and Wales
Simes E, Butler S, Allison E, Barrett B, Bateman A, Cameron A, Crawford M, Frater A, Hoare Z, McMurran M, Moran P, Pilling S, Wason J, Yakeley J, Fonagy P. Bridging the Gap: A Qualitative Study Exploring the Impact of the Involvement of Researchers With Lived Experience on a Multisite Randomised Control Trial in the National Probation Service in England and Wales. Health Expectations 2025, 28: e70162. PMID: 39902497, PMCID: PMC11791406, DOI: 10.1111/hex.70162.Peer-Reviewed Original ResearchConceptsNational Probation ServiceCriminal justice systemProbation serviceCommunity sentencesJustice systemEngagement barriersQualitative studyEx-offendersTrial participantsMultisite randomised controlled trialInvolvement of individualsAdequate clinical supervisionKnowledge generationSemi-structured interviewsData collectorsService user organisationsRandomised controlled trialsEthical argumentsLived experienceInvolvement of researchersPrisonInterview scheduleMultisite RCTDissemination planClinical supervisionA journey towards a trauma informed and responsive Justice system: the perspectives and experiences of senior Justice workers
Cogan N, Tse D, Finlayson M, Lawley S, Black J, Hewitson R, Stergiou C, Aziz S, Hamer H, Short C. A journey towards a trauma informed and responsive Justice system: the perspectives and experiences of senior Justice workers. European Journal Of Psychotraumatology 2025, 16: 2441075. PMID: 39760261, PMCID: PMC11705546, DOI: 10.1080/20008066.2024.2441075.Peer-Reviewed Original ResearchConceptsTrauma-informed practicesService usersRisk of re-traumatisationRe-traumatisationImplementation of trauma-informed practicesReflexive thematic approachStaff well-beingService user perspectivesWell-beingQualitative research designThematic approachImplementing trauma-informed practicesOvercome barriersAudio-recordedOrganisational levelSemi-structuredService deliveryService settingsStrengths-basedWork environmentExperiences of practitionersTraumatic responsesBody of researchGrowing body of researchResearch design“Men Take Care of Each Other”: Evaluation of a Community-Based Model for Pre-exposure Prophylaxis Services Among Male Bar Patrons in Rural South Africa
Chen P, Nkosi S, Moll A, Braithwaite R, Ngubane S, Shenoi S. “Men Take Care of Each Other”: Evaluation of a Community-Based Model for Pre-exposure Prophylaxis Services Among Male Bar Patrons in Rural South Africa. AIDS Patient Care And STDs 2025, 39: 3-11. PMID: 39761130, PMCID: PMC11839517, DOI: 10.1089/apc.2024.0154.Peer-Reviewed Original ResearchConceptsMale nursesAlcohol-serving venuesPrEP servicesHIV servicesHIV testingSocial supportHIV service delivery modelsAlcohol useNurse follow-upAlcohol-associated riskAvoidance of stigmaCommunity-based modelRural South AfricaService delivery modelsPre-exposure prophylaxisMale bar patronsPatient ambassadorsCommunity nursesNursing assistantsPrEP disclosurePrEP initiationHome visitsSouth AfricaPost-pilotClinic attendance
2024
“No One Really Prepares You”: Lived Experiences of Women Division Chiefs in Academic Medicine
Loyal J, Beagan R, Dias M, Asnes A. “No One Really Prepares You”: Lived Experiences of Women Division Chiefs in Academic Medicine. Journal Of Women's Health 2024, 34: e401-e408. PMID: 39714989, DOI: 10.1089/jwh.2024.0416.Peer-Reviewed Original ResearchConceptsAuthentic leadership styleAcademic medical centerLeadership styleLeadership rolesLeadership positionsSenior-level leadership positionsMedical CenterConstant comparative methodDivision chiefsSenior leadership rolesInfluence of womenU.S. academic medical centersGrounded theory approachSemi-structured interviewsSuccession planningMedical school classLeadership developmentThematic sufficiencyWomen leadersQualitative studyChief positionDivision headsLack of recognitionPositive influenceObjectives:</i></b>Scope of work and contributions of female community health volunteers in Nepal’s healthcare sector: a qualitative study
Joshi A, Marasini S, Sharma S, Paneru B, Kunwar S, Shrestha A, Shrestha A, Karmacharya B. Scope of work and contributions of female community health volunteers in Nepal’s healthcare sector: a qualitative study. BMJ Open 2024, 14: e082363. PMID: 39806704, PMCID: PMC11667457, DOI: 10.1136/bmjopen-2023-082363.Peer-Reviewed Original ResearchConceptsFemale community health volunteersCommunity health volunteersIn-depth interviewsHealth volunteersShortage of health workforceQualitative studyPromote healthcare servicesHealth workforceLocal stakeholdersHealth workersHealth systemHealthcare servicesJudgmental attitudesCoping strategiesHealth sectorService deliveryEffective programmesGeographical challengesHealth commoditiesHealthMother groupKavre districtWard representativesProfessional experienceGrassroots levelParent Perspectives on Nirsevimab for Their Newborn.
Hinderstein S, Aragona E, Loyal J. Parent Perspectives on Nirsevimab for Their Newborn. Pediatrics 2024, 154 PMID: 39587878, DOI: 10.1542/peds.2024-067532.Peer-Reviewed Original ResearchConceptsRespiratory syncytial virusRespiratory syncytial virus prophylaxisRSV disease severityMaternal RSV vaccineHealth Belief ModelHealthy newbornsRSV vaccineRSV infectionParents of newbornsNewborn unitSyncytial virusNirsevimabSide effectsNewbornsBelief ModelPediatric hospitalMonoclonal antibodiesDisease severityCOVID-19 vaccineProphylaxisVaccineIncreasing overall awarenessInfantsPediatrician's recommendationPositively influence decisionMoving towards transformative justice for black women survivors of intimate partner violence: an intersectional qualitative study
Sharpless L, Kershaw T, Knight D, Campbell J, Phillips K, Katague M, Willie T. Moving towards transformative justice for black women survivors of intimate partner violence: an intersectional qualitative study. BMC Public Health 2024, 24: 2730. PMID: 39379927, PMCID: PMC11459893, DOI: 10.1186/s12889-024-20244-y.Peer-Reviewed Original ResearchConceptsWomen IPV survivorsIPV survivorsJustice responsesJustice preferencesTransformative justicePartner violenceSurvivors of intimate partner violenceWomen survivors of intimate partner violenceIntimate partner violenceCriminal legal systemBackgroundIntimate partner violenceQualitative studyCommunity-based approachCounseling servicesHousing supportInductive analytical techniquesPerpetuate violenceRepairing harmWomen's claimsIntergenerational cycleLegal systemAnticipated discriminationPoliceIPVJusticeEducational and personal impacts of the COVID-19 pandemic on emergency medicine resident physicians: a qualitative study
Fults E, Gerwin J, Boyce M, Joseph M, Wong A, Evans L. Educational and personal impacts of the COVID-19 pandemic on emergency medicine resident physicians: a qualitative study. BMC Medical Education 2024, 24: 1055. PMID: 39334215, PMCID: PMC11429862, DOI: 10.1186/s12909-024-05972-4.Peer-Reviewed Original ResearchMeSH KeywordsAdultCOVID-19Emergency MedicineFemaleHumansInternship and ResidencyInterviews as TopicMalePandemicsPhysiciansQualitative ResearchSARS-CoV-2ConceptsEmergency medicine resident physiciansResident physiciansQualitative studyEmergency departmentResident physicians' experiencesEmergency medicine facultyCOVID-19 pandemicResident physician trainingResidency program leadershipSocial support systemsBackgroundThe COVID-19 pandemicData saturationPhysician trainingCode teamFrontline physiciansPractice styleUrban academic institutionProgram leadershipPhysician experienceMedicine facultyResident experiencePersonal impactPhysiciansMoral injuryResident preparationQualitative interview study of patient-reported symptoms, impacts and treatment goals of patients with obstructive hypertrophic cardiomyopathy
Shore S, Ervin C, Kosa K, Fehnel S, Salberg L, Butzner M, Heitner S, Jacoby D, Saberi S. Qualitative interview study of patient-reported symptoms, impacts and treatment goals of patients with obstructive hypertrophic cardiomyopathy. BMJ Open 2024, 14: e081323. PMID: 39289016, PMCID: PMC11409399, DOI: 10.1136/bmjopen-2023-081323.Peer-Reviewed Original ResearchConceptsQualitative interview studyTreatment goalsShortness of breathTreatment goals of patientsInterview studyAffecting health statusGoals of patientsHypertrophic Cardiomyopathy AssociationPatient-reported symptomsSemi-structured interviewsPhysical functionPatient experiencePatient perspectiveSymptom burdenUS adultsObstructive HCMObstructive hypertrophic cardiomyopathyHealth statusTelephone interviewsPsychosocial impactChest pain/pressureLifestyle-limiting symptomsHypertrophic cardiomyopathyImproving shortness of breathDizziness/light-headednessMultilevel determinants of antiretroviral therapy initiation and retention in the test-and-treat era of Nepal: a qualitative study
Shrestha A, Poudel L, Shrestha S, Jha N, Kuikel B, Shakya P, Kunwar R, Pandey L, KC M, Wilson E, Deuba K. Multilevel determinants of antiretroviral therapy initiation and retention in the test-and-treat era of Nepal: a qualitative study. BMC Health Services Research 2024, 24: 927. PMID: 39138448, PMCID: PMC11323673, DOI: 10.1186/s12913-024-11311-6.Peer-Reviewed Original ResearchConceptsAntiretroviral therapy initiationHealthcare providersDenial of HIV statusPerspectives of healthcare providersAntiretroviral therapyCommunity health workersStrengthening healthcare systemsART initiationHealth system levelLong-term health outcomesHealthcare system levelAntiretroviral therapy clientsChanging public health policyFear of disclosureIndividual-level facilitatorsSocio-ecological modelImplementing antiretroviral therapyAvailability of medicationsPublic health policiesAntiretroviral therapy adherencePerceived health benefitsFear of deathClient tracking systemProvision of free treatmentHealth workersBreastfeeding among women employed in Mexico’s informal sector: strategies to overcome key barriers
Goodman J, Lara-Mejía V, Hernández-Cordero S, Vilar-Compte M. Breastfeeding among women employed in Mexico’s informal sector: strategies to overcome key barriers. International Journal For Equity In Health 2024, 23: 144. PMID: 39044248, PMCID: PMC11264414, DOI: 10.1186/s12939-024-02147-x.Peer-Reviewed Original ResearchMeSH KeywordsAdultBreast FeedingEmploymentFemaleHumansInformal SectorInterviews as TopicMexicoQualitative ResearchWomen, WorkingConceptsInformal employmentInformal sectorSocial protection programsWorking conditions of womenCondition of womenShort-term policiesSocial protectionEconomic vulnerabilityQualitative thematic analysisInformal workersMaternity leaveRespondents expressed concernsPotential policiesGovernment agenciesPolicyEmploymentThematic analysisMaternal protectionLabor protectionLonger-term solutionsProtection programsInternational organizationsLegal equivalentRelevant programsBreastfeeding“Nothing Is More Powerful than Words:” How Patient Experience Narratives Enable Improvement
Grob R, Lee Y, Shaller D, Warne E, Matta S, Schlesinger M, Nembhard I. “Nothing Is More Powerful than Words:” How Patient Experience Narratives Enable Improvement. Quality Management In Health Care 2024, 33: 149-159. PMID: 38941581, DOI: 10.1097/qmh.0000000000000477.Peer-Reviewed Original ResearchMeSH KeywordsAmbulatory Care FacilitiesFemaleHumansInterviews as TopicMaleNarrationPatient SatisfactionQualitative ResearchQuality ImprovementConceptsPatient experience scoresExperience scoresPatient experience assessmentQuality improvement projectResponsive service provisionThematic analysis techniqueImprove careImprovement projectQualitative studyMax QDAImprovement effortsQualitative interviewsOutpatient settingOutpatient clinicCoding reportsStaff strengthImprovement workTraining needsNarrative dataDay-to-day workService provisionStaffPositive practiceInterviewsExperience assessmentOur Wished‐for Responses: Recommendations for Creating a Lived and Embodied Sense of Safety During Mental Health Crisis
Roennfeldt H, Hamilton B, Hill N, Castles C, Glover H, Byrne L, Roper C. Our Wished‐for Responses: Recommendations for Creating a Lived and Embodied Sense of Safety During Mental Health Crisis. Health Expectations 2024, 27: e14122. PMID: 38898606, PMCID: PMC11186845, DOI: 10.1111/hex.14122.Peer-Reviewed Original ResearchMeSH KeywordsAdultCrisis InterventionFemaleHumansInterviews as TopicMaleMental DisordersMental Health ServicesMiddle AgedQualitative ResearchConceptsMental health crisisCrisis careService usersHermeneutic phenomenological approachPerspectives of peopleHealth crisisHolistic careCrisis servicesSelf-reportSense of safetyCrisis supportCareMedical interventionsPhenomenological approachLived experienceImpact peoplePhone linesParticipantsInterviewsServicesPeopleEmotional holdingDesign servicesCrisis responseDesirable responses“It’s another gay disease”: an intersectional qualitative approach contextualizing the lived experiences of young gay, bisexual, and other sexual minoritized men in the United States during the mpox outbreak
Takenaka B, Kirklewski S, Griffith F, Gibbs J, Lauckner C, Nicholson E, Tengatenga C, Hansen N, Kershaw T. “It’s another gay disease”: an intersectional qualitative approach contextualizing the lived experiences of young gay, bisexual, and other sexual minoritized men in the United States during the mpox outbreak. BMC Public Health 2024, 24: 1574. PMID: 38862933, PMCID: PMC11167942, DOI: 10.1186/s12889-024-19062-z.Peer-Reviewed Original ResearchConceptsMpox outbreakSemi-structured qualitative interviewsUnited StatesHomophobic discoursesIntersectional frameworkAnti-LGBTQMainstream social mediaNon-governmentGay diseaseQualitative interviewsHealth equityLived experienceMistrustQualitative approachNews outletsLGTBQGovernmentDiscourseMenPublic health emergencyStigmatizationSouth regionHealthHealth emergencyInterviewsDevelopment and evaluation of a questionnaire to capture environmental and occupational inhalational exposures in adults with fibrotic interstitial lung disease
Swaminathan A, McFatrich M, Mkumba L, Wright L, Redlich C, Snyder L, Reeve B, Patel D, Gulati M. Development and evaluation of a questionnaire to capture environmental and occupational inhalational exposures in adults with fibrotic interstitial lung disease. Respiratory Research 2024, 25: 372. PMID: 39407223, PMCID: PMC11481565, DOI: 10.1186/s12931-024-03000-z.Peer-Reviewed Original ResearchConceptsCognitive interviewsContent validityExposure questionnaireMultidisciplinary teamSemi-structured interview guideEvidence of content validityFibrosing ILDsInterstitial lung diseaseRelevant exposuresFibrotic interstitial lung diseaseClinically relevant exposuresTrained interviewersInterview guideAssessment QuestionnaireQuestionnaireInterviewsLung diseaseAdultsTeamClinicPatientsSource of misunderstandingOccupational inhalation exposureValidityDiseasePrEP initiation and adherence among Black cisgender women in Mississippi: The role of HIV and PrEP stigma and social support
Knight D, Monger M, Phillips K, Antar A, Baral S, Stockman J, Nunn A, Chan P, Mayer K, Mena L, Kershaw T, Willie T. PrEP initiation and adherence among Black cisgender women in Mississippi: The role of HIV and PrEP stigma and social support. Women's Health 2024, 20: 17455057241296905. PMID: 39566475, PMCID: PMC11693850, DOI: 10.1177/17455057241296905.Peer-Reviewed Original ResearchConceptsBlack cisgender womenCisgender Black womenPrEP initiationSemi-structured interviewsSocial supportFocus groupsBlack womenHIV stigmaPrEP stigmaHIV preventionBarriers to HIV preventionCisgender womenLack of social supportLevels of social supportHIV pre-exposure prophylaxisImprove social supportAnticipated PrEP stigmaInductive thematic analysisSexual health clinicsAnalyzing focus groupsDecrease HIV transmissionWomen at-riskPre-exposure prophylaxisSocial support rolesPrEP indications
2023
Psychosocial resources underlying disaster survivors’ posttraumatic stress symptom trajectories: insight from in-depth interviews with mothers who survived Hurricane Katrina
Tekin S, Burrows K, Billings J, Waters M, Lowe S. Psychosocial resources underlying disaster survivors’ posttraumatic stress symptom trajectories: insight from in-depth interviews with mothers who survived Hurricane Katrina. European Journal Of Psychotraumatology 2023, 14: 2211355. PMID: 37334999, PMCID: PMC10281293, DOI: 10.1080/20008066.2023.2211355.Peer-Reviewed Original Research
2022
Complementary and integrative medicine perspectives among veteran patients and VHA healthcare providers for the treatment of headache disorders: a qualitative study
Kuruvilla DE, Lindsey H, Grinberg AS, Goldman RE, Riley S, Baird S, Fenton BT, Sico JJ, Damush TM. Complementary and integrative medicine perspectives among veteran patients and VHA healthcare providers for the treatment of headache disorders: a qualitative study. BMC Complementary Medicine And Therapies 2022, 22: 22. PMID: 35078450, PMCID: PMC8790919, DOI: 10.1186/s12906-022-03511-6.Peer-Reviewed Original ResearchConceptsVeterans Health AdministrationVeteran patientsHeadache managementClinical providersBackgroundThe Veterans Health AdministrationFavorable adverse effect profileVHA healthcare providersAdverse effect profileManagement of veteransChronic headache managementCIM modalitiesWhole health systemEffect profileHeadache centerChronic headacheHeadache disordersPatients' perceptionsHeadache treatmentSafe additionPatientsTreatment efficacyIntegrative medicineHealth AdministrationProviders' perceptionsHealthcare providers
2021
Examining facial emotion recognition as an intermediate phenotype for psychosis: Findings from the EUGEI study
Fusar-Poli L, Pries LK, van Os J, Erzin G, Delespaul P, Kenis G, Luykx JJ, Lin BD, Richards AL, Akdede B, Binbay T, Altınyazar V, Yalınçetin B, Gümüş-Akay G, Cihan B, Soygür H, Ulaş H, Cankurtaran EŞ, Kaymak SU, Mihaljevic MM, Andric-Petrovic S, Mirjanic T, Bernardo M, Mezquida G, Amoretti S, Bobes J, Saiz PA, García-Portilla MP, Sanjuan J, Aguilar EJ, Santos JL, Jiménez-López E, Arrojo M, Carracedo A, López G, González-Peñas J, Parellada M, Maric NP, Atbaşoğlu C, Üçok A, Alptekin K, Saka MC, investigators G, Aguglia E, Arango C, O'Donovan M, Rutten B, Guloksuz S. Examining facial emotion recognition as an intermediate phenotype for psychosis: Findings from the EUGEI study. Progress In Neuro-Psychopharmacology And Biological Psychiatry 2021, 113: 110440. PMID: 34536513, DOI: 10.1016/j.pnpbp.2021.110440.Peer-Reviewed Original ResearchMeSH KeywordsAdultFacial RecognitionFemaleGenomicsHumansInterviews as TopicMalePhenotypePsychotic DisordersRisk FactorsSiblingsConceptsDegraded Facial Affect Recognition TaskFacial emotion recognitionEmotion recognitionFacial affect recognition taskAffect recognition taskSocial cognition impairmentsFER deficitsIndividual emotionsPRS-SCZFER accuracyRecognition taskHealthy controlsSchizotypy-RevisedCognition impairmentIntermediate phenotypesPsychosis riskStructured interviewsEUGEI studySchizophreniaTotal scoreSiblingsGenetic riskDifferent patternsPsychosisEmotionsSocial Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda
Tusubira AK, Nalwadda CK, Akiteng AR, Hsieh E, Ngaruiya C, Rabin TL, Katahoire A, Hawley NL, Kalyesubula R, Ssinabulya I, Schwartz JI, Armstrong-Hough M. Social Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda. Annals Of Global Health 2021, 87: 86. PMID: 34458110, PMCID: PMC8378074, DOI: 10.5334/aogh.3308.Peer-Reviewed Original ResearchConceptsNon-communicable diseasesSelf-care practicesPrescribed medicinesConventional medicinePatient's social support networkRural UgandaSelf-care activitiesBlood sugar levelsCross-sectional qualitative studyResource-limited settingsSelf-care effortsSocial support networksSocial supportNCD clinicsNineteen patientsAdult patientsHealth facilitiesPatientsPatient strategiesManaging diabetesHypertensionSelf-CareDiabetesDiagnostic testsLow-income countries
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