2025
Whom Should We Regard as Responsible for Health Record Inaccuracies That Hinder Population-Based Fact Finding?
Akgün K, Feder S. Whom Should We Regard as Responsible for Health Record Inaccuracies That Hinder Population-Based Fact Finding? The AMA Journal Of Ethic 2025, 27: e6-13. PMID: 39745909, DOI: 10.1001/amajethics.2025.6.Peer-Reviewed Original ResearchConceptsElectronic health recordsPatient-level dataHealth recordsFrontline cliniciansCommunity partnersEHR dataHealth dataPatient reportsAnalysis of patient-level dataData entryPopulation-level analysisHealthReview processEpidemiological purposesScience expertsCliniciansFrontlineData inquiryDataCommentaryCommunityStakeholdersPatientsPartnersRecords
2024
Black Fathers' Views on Breastfeeding Facilitators, Barriers, and Support Services: Insights From a Qualitative Community‐Based Participatory Research Study
Rios J, Frieson T, Ray N, Edwards D, Pérez‐Escamilla R, Duffany K. Black Fathers' Views on Breastfeeding Facilitators, Barriers, and Support Services: Insights From a Qualitative Community‐Based Participatory Research Study. Maternal And Child Nutrition 2024, e13776. PMID: 39658760, DOI: 10.1111/mcn.13776.Peer-Reviewed Original ResearchCommunity-based participatory research studyParticipatory research studyBreastfeeding support servicesSupport servicesBreastfeeding educationBreastfeeding facilitatorsBreastfeeding knowledgeQualitative community-based participatory research studyHospital discharge supportPrenatal breastfeeding educationFocus group guidePerceptions of barriersSocio-ecological modelPerceptions of breastfeedingMothers' support networksFamily discouragementBreastfeeding perceptionsDischarge supportBreastfeeding resourcesGroup guideBreastfeeding supportPostnatal periodEthnic disparitiesCommunity partnersPrenatal to postnatal periodPrEP your step: Implementing an online crowdsourcing contest to engage young people in HIV prevention in Washington DC, USA
Taggart T, Mathews A, Junious T, Lindsey J, Augustine A, Debnam C, Boyd Y, Wright S, Tucker J, Magnus M. PrEP your step: Implementing an online crowdsourcing contest to engage young people in HIV prevention in Washington DC, USA. PLOS ONE 2024, 19: e0313882. PMID: 39556546, PMCID: PMC11573147, DOI: 10.1371/journal.pone.0313882.Peer-Reviewed Original ResearchConceptsPrEP messagingSemi-structured interviewsHigh risk of HIVCommunity engagementCrowdsourced messagesYoung peopleCross-sectional surveyRisk of HIVPre-exposure prophylaxisPublic health impactImplementation researchPromote PrEPHIV preventionMedical providersConvenience sampleHIV incidenceCommunity partnersPromotion messagesEngaging young peopleWorld Health OrganizationThematic codingSurvey participantsPrEPHealth impactsSocial marketingField Notes from the Border: Lessons Learned in Conducting Mental Health Research Involving Newly Arrived Latinx Immigrants as Study Participants
Vargas L, Ariefdjohan M, Page C, Meisel Z, Ulrich C, Alegría M, Pimentel N, Epperson C, Richmond T. Field Notes from the Border: Lessons Learned in Conducting Mental Health Research Involving Newly Arrived Latinx Immigrants as Study Participants. Journal Of Immigrant And Minority Health 2024, 27: 181-189. PMID: 39503832, PMCID: PMC11781956, DOI: 10.1007/s10903-024-01643-0.Peer-Reviewed Original ResearchPublic health researchLatinx immigrantsImmigrant populationHealth researchCommunity partnersParticipant consentStudy participantsVulnerable populationsData collection proceduresStudy populationField notesResearch protocolParticipantsUnique issuesBest practicesCultural fluencyEthical considerationsCollection proceduresUS southern borderPopulationLatinxUnique perspectiveSupporting emotion regulation in children on the autism spectrum: co-developing a digital mental health application for school-based settings with community partners
Kaur I, Kamel R, Sultanik E, Tan J, Mazefsky C, Brookman-Frazee L, McPartland J, Goodwin M, Pennington J, Beidas R, Mandell D, Nuske H. Supporting emotion regulation in children on the autism spectrum: co-developing a digital mental health application for school-based settings with community partners. Journal Of Pediatric Psychology 2024, 50: 129-140. PMID: 39441712, PMCID: PMC11753873, DOI: 10.1093/jpepsy/jsae078.Peer-Reviewed Original ResearchConceptsMental health applicationsUser-centered design frameworkHealth applicationsDigital mental health applicationsApp developmentCommunity partnersWearable devicesWearable biosensingNeeds assessment interviewsDeterminants of implementationExpert advisory boardDesign frameworkSchool-based settingsCo-designDesign workshopsIn-personSystematic reviewAdvisory boardQualitative dataUsabilityAssessment interviewsWearableFeasibility testReduce challenging behaviorAppsInternational equity in access to home dialysis
Iyengar A, Kalyesubula R, Darwish R, Luyckx V. International equity in access to home dialysis. Current Opinion In Nephrology & Hypertension 2024, 34: 112-120. PMID: 39282856, PMCID: PMC11608618, DOI: 10.1097/mnh.0000000000001027.Peer-Reviewed Original ResearchHome dialysisIn-centreMiddle-income countriesIn-centre haemodialysisDrivers of inequalityHealth systemLack of resourcesCommunity partnersPatient levelEquitable accessPeritoneal dialysisHomeHealthCliniciansGeopolitical levelNursesPatientsIn-centre dialysisAccessInequalityDoctorsLackDialysisReducing global inequalityCountriesQualitative description of interpersonal HIV stigma and motivations for HIV testing among gays, bisexuals, and men who have sex with men in Ghana’s slums—BSGH-005
Abu-Ba’are G, Shamrock O, Zigah E, Ogunbajo A, Dakpui H, Agbemedu G, Boyd D, Ezechi O, Nelson L, Torpey K. Qualitative description of interpersonal HIV stigma and motivations for HIV testing among gays, bisexuals, and men who have sex with men in Ghana’s slums—BSGH-005. PLOS ONE 2024, 19: e0289905. PMID: 38837972, PMCID: PMC11152275, DOI: 10.1371/journal.pone.0289905.Peer-Reviewed Original ResearchConceptsHIV testingHIV stigmaHIV testing servicesLevel of stigmaFace-to-face interviewsHIV education interventionsHIV knowledge levelsSummative content analysisGBMSM livingEducational interventionHIV preventionHealthcare servicesHIV prevalenceCommunity partnersHIV responseTesting servicesHIV statusHIV vulnerabilityGBMSMSexual healthStigmaKnowledge levelContent analysisHIVSlumsJuvenile Justice-Based Interdisciplinary Collective Care: An Innovative Approach
Brown S, Perez O. Juvenile Justice-Based Interdisciplinary Collective Care: An Innovative Approach. Community Mental Health Journal 2024, 60: 1042-1054. PMID: 38730075, DOI: 10.1007/s10597-024-01285-4.Peer-Reviewed Original ResearchConceptsYouth offendersNegative life outcomesMental health concernsJuvenile justice systemCriminogenic riskJustice systemMental health needsDelinquent behaviorUnited StatesLife outcomesOffendersCollective careHealth needsCollective collaborationYouthCommunity partnersHealth concernCultural responsivenessHealth crisisRecidivismConcernsServicesEffective interventionsFamilyScholarshipResearching COVID to enhance recovery (RECOVER) pediatric study protocol: Rationale, objectives and design
Gross R, Thaweethai T, Rosenzweig E, Chan J, Chibnik L, Cicek M, Elliott A, Flaherman V, Foulkes A, Witvliet M, Gallagher R, Gennaro M, Jernigan T, Karlson E, Katz S, Kinser P, Kleinman L, Lamendola-Essel M, Milner J, Mohandas S, Mudumbi P, Newburger J, Rhee K, Salisbury A, Snowden J, Stein C, Stockwell M, Tantisira K, Thomason M, Truong D, Warburton D, Wood J, Ahmed S, Akerlundh A, Alshawabkeh A, Anderson B, Aschner J, Atz A, Aupperle R, Baker F, Balaraman V, Banerjee D, Barch D, Baskin-Sommers A, Bhuiyan, Bind M, Bogie A, Bradford T, Buchbinder N, Bueler E, Bükülmez H, Casey B, Chang L, Chrisant M, Clark D, Clifton R, Clouser K, Cottrell L, Cowan K, D’Sa V, Dapretto M, Dasgupta S, Dehority W, Dionne A, Dummer K, Elias M, Esquenazi-Karonika S, Evans D, Faustino E, Fiks A, Forsha D, Foxe J, Friedman N, Fry G, Gaur S, Gee D, Gray K, Handler S, Harahsheh A, Hasbani K, Heath A, Hebson C, Heitzeg M, Hester C, Hill S, Hobart-Porter L, Hong T, Horowitz C, Hsia D, Huentelman M, Hummel K, Irby K, Jacobus J, Jacoby V, Jone P, Kaelber D, Kasmarcak T, Kluko M, Kosut J, Laird A, Landeo-Gutierrez J, Lang S, Larson C, Lim P, Lisdahl K, McCrindle B, McCulloh R, McHugh K, Mendelsohn A, Metz T, Miller J, Mitchell E, Morgan L, Müller-Oehring E, Nahin E, Neale M, Ness-Cochinwala M, Nolan S, Oliveira C, Osakwe O, Oster M, Payne R, Portman M, Raissy H, Randall I, Rao S, Reeder H, Rosas J, Russell M, Sabati A, Sanil Y, Sato A, Schechter M, Selvarangan R, Tejtel S, Shakti D, Sharma K, Squeglia L, Srivastava S, Stevenson M, Szmuszkovicz J, Talavera-Barber M, Teufel R, Thacker D, Trachtenberg F, Udosen M, Warner M, Watson S, Werzberger A, Weyer J, Wood M, Yin H, Zempsky W, Zimmerman E, Dreyer B, Consortium O. Researching COVID to enhance recovery (RECOVER) pediatric study protocol: Rationale, objectives and design. PLOS ONE 2024, 19: e0285635. PMID: 38713673, PMCID: PMC11075869, DOI: 10.1371/journal.pone.0285635.Peer-Reviewed Original ResearchConceptsYoung adultsClinical courseAdolescent Brain Cognitive DevelopmentCaregiver-child pairsLong-term outcomesObservational cohort studyOutcomes of COVID-19De novo cohortAdolescent Brain Cognitive Development StudySociodemographic correlatesCommunity partnersBaseline assessmentLongitudinal follow-upPotential therapeutic interventionsPediatric protocolsCohort studyCollaborative partnershipsProspective cohortFollow-upStudy protocolFederal partnersNIH Researching COVIDLong-term outcomes of COVID-19Enhanced recoveryData collection
2023
Using the exploration, preparation, implementation, sustainment (EPIS) framework to assess the cooperative re-engagement controlled trial (CoRECT)
Elder H, Lang S, Villanueva M, John B, Roosevelt K, Altice F, Brady K, Gibson B, Buchelli M, DeMaria A, Randall L. Using the exploration, preparation, implementation, sustainment (EPIS) framework to assess the cooperative re-engagement controlled trial (CoRECT). Frontiers In Public Health 2023, 11: 1223149. PMID: 38106893, PMCID: PMC10722986, DOI: 10.3389/fpubh.2023.1223149.Peer-Reviewed Original ResearchConceptsPublic health surveillance dataHealth surveillance dataHIV careSurveillance dataHealth department jurisdictionsPublic health practicePublic health agenciesStudy protocolClinic dataClinic partnersCase identificationHealth practicesHealth agenciesIntervention design processTrial sitesIntervention developmentTrialsCareInterventionSustainment (EPIS) frameworkEPIS frameworkIterative discussionsStaff capacityCommunity partnersRe-EngagementKailo: a systemic approach to addressing the social determinants of young people’s mental health and wellbeing at the local level
Hobbs T, De Lima E, Bevington D, Preece C, Allen K, Barna P, Berry V, Booker T, Davies K, Davis G, Deighton J, Freeman L, Fuggle P, Goddard E, Barker T, Harris J, Heather A, Jardiel M, Joshi K, Keenan M, Kennedy L, Malhotra T, March A, Pilling S, Pitt M, Potter K, Rehill N, Shand J, Surtees R, Fonagy P. Kailo: a systemic approach to addressing the social determinants of young people’s mental health and wellbeing at the local level. Wellcome Open Research 2023, 8: 524. PMID: 38798997, PMCID: PMC11126905, DOI: 10.12688/wellcomeopenres.20095.1.Peer-Reviewed Original ResearchYoung people's mental healthPeople's mental healthSocial determinantsMental healthMental health disordersPreventative approachLocal levelPreventative strategiesHealth disordersYoung peopleWellbeing of childrenHealthSystemic influencesChildrenImpactful strategyCommunity partnersSupport programsSystem leadersLocal partnersSystemic issuesVast majorityDeterminantsWellbeingScant attentionLevels93 Empowering the Next Generation of Clinical & Translational Scientists
Johnson T, Davis J, Smith B, Krystal J, Sevier B, Perry L, Clayton E, Black S. 93 Empowering the Next Generation of Clinical & Translational Scientists. Journal Of Clinical And Translational Science 2023, 7: 26-26. PMCID: PMC10129482, DOI: 10.1017/cts.2023.176.Peer-Reviewed Original ResearchVirtual learning experienceLearning experienceMotivated studentsCourse workSummer programEducational offeringsGroup projectsPilot yearJournal clubCommunity partnersSimilar opportunitiesInternsHealthcare workforceCultural ambassadorsResults/StudentsInternshipSkilled workersCareerProgramYouthWorkforceParticipationCurrent topicsObjectives/goalsAction learning and public health pedagogy: Student reflections from an experiential public health course
Pham C, Cunningham S, Humphries D. Action learning and public health pedagogy: Student reflections from an experiential public health course. Frontiers In Public Health 2023, 11: 1128705. PMID: 37056658, PMCID: PMC10086179, DOI: 10.3389/fpubh.2023.1128705.Peer-Reviewed Original ResearchConceptsPractice experienceStudent reflectionsFuture public health professionalsCohorts of studentsPublic health pedagogyCross-cutting skillsPublic health coursesPublic health curriculumStudent perspectivesLearning experienceHealth pedagogyReflection essaysHealth curriculumPractical skillsQualitative analysis approachHealth coursesAction learningPublic health professionalsPractice opportunitiesMPH programPaper assignmentStudentsAssignment instructionsSkill buildingCommunity partners
2022
Coalition Building and Food Insecurity: How an Equity and Justice Framework Guided a Viable Food Assistance Network
Santilli A, Lin-Schweitzer A, Morales S, Werlin S, Hart K, Cramer J, Martinez J, Duffany K. Coalition Building and Food Insecurity: How an Equity and Justice Framework Guided a Viable Food Assistance Network. International Journal Of Environmental Research And Public Health 2022, 19: 11666. PMID: 36141937, PMCID: PMC9517197, DOI: 10.3390/ijerph191811666.Peer-Reviewed Original ResearchConceptsCoalition buildingFood insecurityAssistance networkEquitable resource distributionJustice frameworkCommunity organizingSocial changeDocument reviewFood assistancePopulation health outcomesExplicit focusFood accessCommunity partnersFood systemsFood ProgramEquitable accessEquityJusticeCOVID-19 pandemicInsecurityUnited StatesUnderserved communitiesCommunityPotential communityResource distribution“What Does it Mean to be Trauma-Informed?”: A Mixed-Methods Study of a Trauma-Informed Community Initiative
Champine RB, Hoffman EE, Matlin SL, Strambler MJ, Tebes JK. “What Does it Mean to be Trauma-Informed?”: A Mixed-Methods Study of a Trauma-Informed Community Initiative. Journal Of Child And Family Studies 2022, 31: 459-472. PMID: 35018088, PMCID: PMC8736308, DOI: 10.1007/s10826-021-02195-9.Peer-Reviewed Original ResearchTrauma-informed practiceTrauma-informed communityMixed-methods studyCommunity partnersTrauma-informed workFuture community-engaged researchChild traumaSense of hopeEmotional environmentTrauma-InformedSample t-testParticipants' beliefsCommunity connectionsParticipants' perceptionsFocus groupsTrauma trainingParticipant engagementEducationSocial developmentCommunity-based initiativesMethodological considerationsCommunity-engaged researchCeiling effectsPerceptionBeliefs
2021
Lessons From a Community Driven Experiential Public Health Course
Humphries D, Bastida C, Walker M. Lessons From a Community Driven Experiential Public Health Course. Pedagogy In Health Promotion 2021, 8: 231-237. DOI: 10.1177/23733799211056311.Peer-Reviewed Original ResearchExperiential learning opportunityUnique learning experiencePractice-based learningPublic health coursesPublic health studentsPublic health trainingRigorous courseworkStudent reflectionsLearning experienceLearning opportunitiesStudent interestCourse elementsPreceptor evaluationsHealth coursesHealth studentsPractice opportunitiesPracticum instructorsAccreditation requirementsAddress health disparitiesStudentsPractice activitiesCommunity partnersHealth trainingSupportive structuresBest practicesParticipatory Research Engagement of Vulnerable Populations: Employing Survivor-Centered, Trauma-Informed Approaches
Jumarali S, Nnawulezi N, Royson S, Lippy C, Rivera A, Toopet T. Participatory Research Engagement of Vulnerable Populations: Employing Survivor-Centered, Trauma-Informed Approaches. Journal Of Participatory Research Methods 2021, 2 DOI: 10.35844/001c.24414.Peer-Reviewed Original ResearchVulnerable populationsParticipatory engagementIntimate partner violence survivorsCommunity practiceParticipatory research methodsViolence intervention programsAcademic partnersTrauma-Informed ApproachSurvivor populationViolence survivorsPractice recommendationsIntimate partnersSafety-related needsParticipatory methodsSurvivorsIntervention programsEngagement processResearch engagementCommunity partnersResearch processAdvisory GroupImportant lessonsEngagementResearch methodsSpecific aimAn application of the ADAPT-ITT model to an evidence-based behavioral HIV prevention intervention for men who have sex with men in Ghana
Abubakari G, Turner D, Nelson L, Odhiambo A, Boakye F, Manu A, Torpey K, Wilton L. An application of the ADAPT-ITT model to an evidence-based behavioral HIV prevention intervention for men who have sex with men in Ghana. International Health Trends And Perspectives 2021, 1: 1-16. DOI: 10.32920/ihtp.v1i1.1412.Peer-Reviewed Original ResearchADAPT-ITT modelEvidence-based behavioral HIV prevention interventionBehavioral HIV prevention interventionsHIV/STD infectionSTD risk factorsHIV prevention interventionsNeeds of MSMPopulation of peopleHIV infectionRisk factorsSTI riskPrevention interventionsSTD infectionSTD prevention effortsHIVSTD riskInfection rateDisproportionate burdenCommunity partnersMSMPrevention effortsRelevant interventionsIndividual-level factorsMenTarget populationRecognizing Cross-Institutional Fiscal and Administrative Barriers and Facilitators to Conducting Community-Engaged Clinical and Translational Research
Carter-Edwards L, Grewe ME, Fair AM, Jenkins C, Ray NJ, Bilheimer A, Dave G, Nunez-Smith M, Richmond A, Wilkins CH. Recognizing Cross-Institutional Fiscal and Administrative Barriers and Facilitators to Conducting Community-Engaged Clinical and Translational Research. Academic Medicine 2021, 96: 558-567. PMID: 33332904, PMCID: PMC7996237, DOI: 10.1097/acm.0000000000003893.Peer-Reviewed Original ResearchConceptsCommunity-engaged researchFiscal capacityAdministrative processesInstitutional policiesKey themesCommunity-engaged research partnershipStakeholder groupsAcademic researchersAdministrative barriersCommunity partnersResearch administratorsCTSA institutionsCross-cutting challengeBest practicesRapid Assessment ProcessTranslational Science Award institutionsEquitable processKey informantsResearch partnershipsPartnership collaborationQualitative studyCollective awarenessTranscribed interviewsManagement culturePurposive sampleCultural Sources of Strength and Resilience: A Case Study of Holistic Wellness Boxes for COVID-19 Response in Indigenous Communities
Aulandez K, Walls M, Weiss N, Sittner K, Gillson S, Tennessen E, Maudrie T, Leppi A, Rothwell E, Bolton-Steiner A, Gonzalez M. Cultural Sources of Strength and Resilience: A Case Study of Holistic Wellness Boxes for COVID-19 Response in Indigenous Communities. Frontiers In Sociology 2021, 6: 612637. PMID: 33869563, PMCID: PMC8022692, DOI: 10.3389/fsoc.2021.612637.Peer-Reviewed Original ResearchJohns Hopkins CenterCOVID-19Community-based participatory researchNon-Indigenous populationsViral infectionPsychosocial stressHealth OfficePsychosocial stressorsCommunity partnersHealth inequitiesCOVID-19 posesCOVID-19 responseCOVID-19 pandemicPhysical wellbeingCOVID-19 reliefUnited StatesReliefInfection
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